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Groups

Duchenne Parents

212 members
Deletions

187 members

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Videos

Run for our Sons

Added by PPMD
Parent Project Muscular Dystrophy: Duchenne PSA

Added by PPMD

Events

MVP Health Care Rochester Marathon 2010

September 12, 2010 from 7:30am to 12pm – Rochester, NY
Cassidy Family Swing for A Cure (IL)

September 17, 2010 from 1pm to 11pm – Waters Edge Golf Club
Dream Auction (WA)

September 18, 2010 from 6pm to 11pm – Greater Tacoma Convention Center
End Duchenne Bike Tour 2010

September 19, 2010 from 8am to 12pm – Charles Stratton School
Coach to Cure

September 25, 2010 all day – Football Games across the US

Latest Activity

Carolyn Morrison added a discussion

What the Teacher tells the class - 2nd grade

My son is now is 2nd grade, and he struggles with stairs, so we are asking for the elevator key and he will use ramps instead of stairs when possible, sit in a chair rather than on the floor etc..What my teacher wants to know is what she should say…

4 hours ago

Eileen DeLong added a blog post

Inspirational article published by Pat Moeschen

I wanted to share this with everyone! Pat you are an inspiration to us all! Not waiting to live, not living to wait... by Pat Moeschen http://www.distrofiamuscular.net/pt_forum.pdf

5 hours ago

Leeandra Arhdeacon added 2 photos

12 hours ago

Leeandra Arhdeacon Today was a sad day for me, i realized that I cant be strong everyday, so today I was sad and its ok to cry,a break wouldnt be so bad.

12 hours ago

Discussion Forum

What the Teacher tells the class - 2nd grade 2 Replies

Started by Carolyn Morrison in Education. Last reply by Allyson 2 hours ago.

broken radius in cast 1 Reply

Started by Char Burke in Physical Therapy. Last reply by Cori Aug 31.

Ataluren 3 Replies

Started by Blazena Kaderabkova in Research. Last reply by Tamara Walters Aug 30.

Photos

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Featured Blog

Why did Blake die? Why do some boys die so young?

I first met Whalen, Blake’s dad, just after Blake was diagnosed. It was summer, just before our Annual Connect Conference scheduled in Pittsburgh, PA. Whalen rode his bike from Florida to Pittsburgh. Red-faced, he arrived- tired, hot, and smiling. From that day on, Whalen and Al… Continue

Posted by Pat Furlong on August 17, 2010 at 3:50pm — 4 Comments